disability / spinal-cord injury

Life is wonderful, and sucks, and then you die

After four years, I have finished at the Royal Commission, and start a new role as Associate Professor in the School of Health Sciences at the University of Sydney, Connected with the Centre for Disability Research and Policy.
Working at the commission was challenging, at times traumatic, stressful and frustrating, but also meaningful. I’m immensely thankful for the disabled people who shared their stories, and my colleagues who supported me along the way.
I look forward to returning to teaching, and to writing and research under my own name and direction. In the way of life, which is determined to keep us humble, I begin in bed with a pressure mark.
I used to say “life sucks and then you die”, and I certainly thought that this last week. Perhaps, more accurately, “Life is wonderful and it sucks and then you die. Hang in there if you can.”

About Author

Shane is an ethicist and theologian, Honorary Associate for the Centre of Disability Research and Policy, the University of Sydney, and Assistant Director, Policy, at the Royal Commission into Violence, Abuse, Neglect, and Exploitation against People with Disability. Shane is proudly disabled, and an occasional blogger on

1 Comment

  • jimkatesea
    September 25, 2023 at 10:48 am

    Shane, Good to see you are still writing. Hope your pressure mark resolves rapidly. I am still slowly marketing my book “Wheelchair Bound? “. Hoping to show sci/quadriplegia is not a death sentence. Started Instagram account @54.years.wheeling. How “Me Before You” is the best selling book about a quad is beyond me. Jim


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