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my hope for a short bed stay seems to be diminishing. The mark remains. The difficulty is trying to work out the cause so I can try to ensure it doesn’t happen again. Do I have a seating problem? Was there something I lay on in my bed? Was my skin pinched in the hoist sling? Too many possibilities and no clear answers.

Of course I can’t really complain about bed rest. I am certainly used to it by now, and am able to amuse myself on the computer.  The challenge is that I feel more handicapped in bed. In a wheelchair I have some freedom. In bed I am utterly trapped. Obviously, I cannot move but also, because of the angle at which I’m lying, I cannot feed myself (I am not actually very good at that out of bed – I am a very messy eater, but it least I can do it myself). Worst of all is “pooing” in bed. I should note at this point that nurses are amazing. It might be a humiliating experience – the inability to control wee and poo and the like– but nurses treat you in a manner that leaves your dignity intact. Nevertheless, it is still a terribly icky experience to lie in bed with faeces.

now, before you imagine that I’m dealing with these things in a praiseworthy manner I need to let you know that I lost it today. I had been allowed up for one hour and on my way back to bed one of the surgical dressers informed me of a hospital policy that I had sidestepped. I had a mini tantrum and stormed out the room. We made up, but the fact is that, just like everybody else, I ride on the winds of emotion, trying but not always succeeding to stay calm and treat my carers (or family or friends or workmates whatever the case may be) with the respect they deserve.

One Response to “AWP: more bed rest and a dummy spit”

  1. Lauren

    Shane thank you for exposing yourself and your very grounded humanity – unsettling and deeply engaging words.
    someone you might like: Tasha Diamant at http://www.humanbodyproject.com
    love from lauren

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  Posts

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September 27th, 2018

Year 12 graduation, parent’s tribute

October 1st, 2017

Million Dollar Baby: a film to love and hate

September 2nd, 2017

Just say hi?

June 22nd, 2017

Pauline Hanson and the politics of demonising difference

April 11th, 2017

Bottoms Up

January 1st, 2017

Wheelchair Adventures

September 2nd, 2016

“Yes I can,” Paralympics and the positivity myth

July 7th, 2016

pain

July 7th, 2016

welcome home

June 10th, 2016

Shane, happiness, and disability: a short vid

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